Welcome to the Club

The Clubhouse

I wake up from pleasant dreams that I can’t remember, but I do know I felt good in them. Slamming awake I realize that it’s still there, the reality of my life. My husband, Jim, has a chronic condition that will require care the rest of his life.  Currently, it’s acute and my days revolve around it. I eat breakfast, not only standing, but taking a bite and then doing something that needs doing before the lymphedema nurse arrives. I haven’t showered, but the dog’s been walked, I’ve tidied, and I’ve thrown a load in the washer. This is the life of a caregiver, disjointed and always on call.

I am not alone in my call to give care, indeed, having joined a club that welcomes all members. Nearly 42 million adults in the US care for elderly parents or friends, with three out of five of these, women. The average age of caregiving recipients is 68.9 while the average age of caregivers is 49. I’m outside the norm on that one. But I’m not outside the norm of a 20 hour work week for caregivers (See https://www.aarp.org/content/dam/aarp/ppi/2020/05/full-report-caregiving-in-the-united-states.doi.10.26419-2Fppi.00103.001.pdf.).

I’ve been thrust in the roll of caregiver four times in my life, and each experience was completely different. Context matters, who you are taking care of matters, your life at the time matters, the malady matters, how long the caregiving will go on matters, and your attitude matters. I suspect this is just a minimal list of all the permutations. For now, let me tell you a little about how caregiving has impacted my life. Maybe others will be inclined to share their experiences.

Two thoughts dominate my internal monologue. The first is how long will this last? Will it consume my entire retirement? There’s anger behind this thought, and I don’t like that in myself. But I’m not only angry. My second prevailing thought is compassion. Someone I love is coping with pain and the knowledge that his life will never be the same, that many of his favorite ways of spending time are gone. Probably toughest of all is watching him cope with the knowledge that this recurring illness is a harbinger of the end of life.

My first introduction to caregiving was when my mother, Margaret, was dying of kidney cancer. My two sisters and I agreed to do two-week stints to help her and our stepfather. I went first. It was heart wrenching to see her in pain all the time. Her cancer had spread to her bones, and she lay, mostly moaning in pain. A strong painkiller patch deadened some of her pain, but she was also in pain about dying. “I’m not ready,” she told me. “I wanted more time.” She never talked about how she would use more time. She knew she wasn’t going to have it.

My mother lived three months from those first two weeks when I cared for her.  I never had a chance to care for her again. When I returned home, my second husband, Gary, was diagnosed with pancreatic cancer. I was to be a caregiver to him instead. Caring for my mother felt like a loving responsibility. I was to quickly learn that caring for a husband whom you love very much is a completely different experience.

Gary lived fourteen months from his diagnosis of cancer. We had a mix of good and bad times, and I never resented caring for him. During the hard times, he was extremely cross from his pain—understandable, but still difficult. During the good times, we mourned the loss of our future together. I was with him every step of the way. A part of my heart was broken when he died. A wise counselor has taught me that within the brokenness is the memory of a man I dearly loved. I can hold that memory and go forward with my own life.

Seventeen years after Gary died, I met Jim, my third husband, whose own wife had died of cancer. We were going along nicely, forgetting how life can turn on a dime. Over one Labor Day weekend, he developed sepsis and went into septic shock, almost dying. We later learned it was from a perforated ulcer. When he came home from the hospital, I was back in the club. What I didn’t expect were the demands of helping someone who’s in great emotional turmoil from the aftermath of the disease itself—depression. We muddled through, not realizing that chronic edema, a consequence of his illness, would create the ideal conditions for another bout of sepsis three years later.  

So here I am again, a fourth time, which I sense will be indeterminate. I must say it feels different. Two days ago, a nurse bluntly said to us “It’s not edema, it’s lymphedema, a different condition. And you’ll have it the rest of your life.”  She kindly didn’t add, “Get used to it,” but it was implied.

Once again, those same two thoughts haunt me—what will happen to my life? Will I be able to do the things I enjoy? Will I ever be able to travel again? And what about my writing? Rosemaling?

Then there’s that second haunting thought about his suffering and fears. I feel challenged to alleviate these and help him go forward. I also feel great sadness for him. Am I up to the challenge?

Susan Allen Toth wrote an excellent memoir, No Saints Around Here: A Caregiver’s Days,  about caring for her husband who died of Parkinson’s disease. She writes:

“So much.” I think that simple phrase could easily be the motto emblazoned on a caregiver’s shield. Love, pain, courage, endurance, loss. So much, so much.

We caregivers are a club. We don’t have to feel isolated because we are in the company of caregivers all over the world, not to mention the circle of help from home nursing services, friends, and family. And we have love, the foundation that helps us go forward no matter how uncertain the future may be. As for me, it’s early, and doggone it, I will do my utmost to take care of both Jim and Karen. If there’s one thing the caregivers club has honed in me, it’s determination!

Belonging….Young and Old

My friend Kathryn recently asked me to write a forward to her newest book on the importance of place and belonging in schools.  Using vignettes culled from decades of trying to understand the experience of children who don’t feel as if they belong in school, she stitches together a story about what adults can do to change that.  As I thought about children and belonging in school, I could not help but connect their experiences—good and bad—with my own.

–image courtesy of K.A. Riley

Kathryn does not define belonging, but her descriptions suggest that young people have a fundamental need to feel that they are in a psychologically safe space.  The drawing above, one of the most evocative in book, makes clear the devastating effects that feeling excluded have on identity.  Joe Murphy has said for years that the first goal of any school must be to weave an invisible cord between a caring adult and each student, so that if the child begins to be pulled away, the adult will know and figure out how to draw them back in.  In other words, personal connectedness is key to safety and belonging.

Woven throughout Kathryn’s book is an imperative:  Educators must be attentive to the experiences that each young person brings with them because children, like adults, need to be known and understood to feel that they belong.  A child who recently immigrated from a war-torn country may gratefully acknowledge that physical safety is fundamental to his feeling of belonging in school, while another whose family experiences routinized racism will need a different form of care to feel safe.

But there is another message, also reflected in Tupac Shakur’s evocative poem, A Rose that Grew from Concrete:  The communities in which young people live deserve the same compassion and understanding.  And belonging can be inseparable from physical place – a sense of being rooted that goes beyond positive relationships and comfort inside a particular school building.  Shakur’s poem is a metaphor for finding resilience in community, and for more attention to all places as a source of individual identity that support social and emotional development.

While contemplating the stories of young people that Kathryn collected, I could not help but think about how belonging also colors my life – and how questions about “where I belong” have come up in so many post-COVID conversations with others.  Dan looked up the other day and said, out of the blue, “we skated through COVID” – no one that we know even got very ill.  But we were in Boulder for a warmer winter close to family when the world shut down and we stayed.  We felt safer and more connected because we were in a “pod” with a daughter, son-in-law, and grandchild, which meant that we were not alone.  We had zoom connections with groups that we were already part of, so we felt engaged – even surrounded — by others.  Of course, we missed hugs, but we were ok and as safe as anyone could be during a global pandemic.

By the time that the 2020 election heated up, however, we had to acknowledge that the passage of time meant that we had effectively moved from Minneapolis, without really planning to do so.  We registered to vote in Colorado.

I keep thinking about  my reaction to Brian Friel’s Home Place, which I saw 14 years ago at the Guthrie Theater.  While the play is ostensibly about racism and class as English rule begins to erode in Ireland in the late 19th century, the dominant narrative is not what stuck.  Instead – then and now — It was that the English owner of The Lodge at Ballyweg kept referring to his real home as a place in Suffolk– where he had not lived for decades.  In other words, where you live is not always where you feel that you belong

And although Dan and I are reasonably content, we were uprooted from Minneapolis but are not rooted where we are.  This feels like a big deal because we are getting older, and like the plants in our garden, we need water, sun, and time to thrive in a place – and we know that this is probably our final chance to find a home. 

The last time I made a major move, from Boston to Minneapolis, I was just over 40.  I had always belonged to groups that were tied to place and space – in Boston, I floated between different jobs but I “belonged” with a close-knit “moms of young children club” and a sister close-by in a house that I loved.  I felt understood and rooted.  When I first landed at the University of Minnesota, I immediately decided that my itchy desires to try new things could be easily satisfied there – in other words, I found a professional home place.  But I changed houses, churches, book groups, and preferred grocery stores on a regular basis.  Now I have not been in Minneapolis for 18 months, during the trauma of COVID and the murder of George Floyd — and am retiring.  I don’t feel that I belong in a city where I lived for over 30 years – I miss the close friends whose lives have enriched mine over the years, but it feels as if the city and I have both changed.  Although Colorado is where I live, it is still not a home place. Everything from the gorgeous scenery to the strange weather feels slightly foreign.  The awe when I look at the Flat Irons each morning (finally, the view that I always wanted) is real, but it still doesn’t fully engage my heart. And, having lived a very circumscribed life during the COVID shutdown, I still have to use Waze to get anywhere but Target.

I am vaguely envious of friends who do have a home place and a sense of roots that connect people and a place to which they always return:  the couple who has Thanksgiving (and an extended vacation) with friends in the town where they lived after they first married; the middle-aged children who go “home” to their parents and old friends on a regular basis; others who spent a substantial sum renovating a house that they cannot imagine leaving because most of those they love the most live in the neighborhood.   The exquisite feeling of knowing that you belong someplace can be visceral…when it connects all the elements that I saw in Kathryn’s description of young people and belonging.

My friends who have a home place take it for granted and cannot imagine what life would be like without that touchstone.  I take for granted the fact that at various times in my life, I have experienced the psychologically safe space and personal connectedness elements of belonging that the children talk about even though I may not have them both today.   This leads me to wonder whether there is a rooted element to belonging for some people, but for others belonging is more fluid and situational.  In my case, generational wandering and relocation has been the dominant narrative of the Seashore clan ever since my father’s family left their tiny, rocky “home place” in Småland as immigrants to the U.S. in the 1860s.  Yet others from my great grandmother’s side, who came from Sweden at the same time, cannot imagine living anywhere but southern Minnesota and attending 4 generational family reunions each year. Are  some people simply more likely to need belonging and place, while others are sustained with the availability of safe spaces and satisfying relationships?

Belonging

(Benbecula)

Martins own this ragged edge

stitching sky peat water cloud

where land weds salt.

Cobalt ripples draw

The sun joyful

Through a mackerel sky.

I scan the gloss of deep

feel the sea   cradle this isle

these crofts   this past

— Fiona Scott

Hand It Over!

A chance, that is. . . for a career in whatever drives someone. In my case it was education, being a teacher. When I entered teaching in the early ‘70s, jobs were scarce. I was lucky to get a job at the local school teaching two hours a day—no one wanted a job that breaks up your day and doesn’t pay much. But it allowed me to ease into teaching after being a stay-at-home mom. I was much younger than the teaching staff at my school; I was filled with liberating ideas, too, like having students call me by my first name, and playing rock music during home room. The culture of my school quickly put me in my place, but I persisted with my “new” ideas about how to support learning. When my low group math class out-performed the middle group at the end of the year on standardized tests, I earned a new respect from my colleagues.

I stayed in education my entire career, first as a classroom teacher, then as a professor, next working on a drop-out prevention program, Check & Connect, and finally as an evaluator for something called reflective practice for nurse home visitors. What a span, and from the vantage point of looking back, I loved it all. But as I hit my 70’s, I became increasingly aware that my passion was moderating and changing. I didn’t go to work with the fire I had once had. Let me say that as a teacher, by Friday afternoon, I was spent. I needed two days to recuperate, but by Monday, I was once again ready to take on the challenge. I’d lost that ability to bounce back, but I saw it in others. A young woman, Angie, with whom I worked on Check & Connect; Ann, a new Ph.D. in evaluation, my partner in the reflective practice evaluation; my own daughter who lived and breathed evaluation. It was time. Time to . . . 

Pass the baton to the new professionals. When I first grabbed the baton in that parttime teaching job, it was light, easy to carry. But by retirement, that baton was heavy, made of intractable human problems like babies getting poor nurturing from chronically depressed mothers; homeless kids, kids with great potential who drop out, persistent gaps in learning—I could go on and on. From my vantage, which might be colored by the fact that my “time is more gone than not,” passing the baton was my rite of retirement. I would pass it to the next runner, the Angie’s and Ann’s full of knowledge, training and inspiration, waiting expectantly to grab the baton and run with it.

Yet I still want to run at least for a while or maybe as long as I can. I haven’t given up on ameliorating the problems, but I’ve changed how I want to run. My way of running suits where I’m at, mostly retired with new interests. I continue to teach an introductory evaluation class, hoping to inspire others to enter the field, and I tutor fifth and sixth graders in math. In my tutoring I work with great teachers who use smart boards and videos and classroom techniques that are the result of years of educational research. I learn from them. But they learn from me, too, because I have teaching strategies from years of practice and study in the field. We are a team and respectful of the knowledge each brings. 

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Salient is Cattell’s theory of intelligence. Cattell posited two types of intelligence, fluid and crystallized. Fluid is strong when we’re young. It allows us to problem solve, innovate, and think abstractly. It goes down through age—but doesn’t disappear. Crystallized is our accumulated knowledge that we acquire through life.

Think young teachers with their new approaches working together with the seasoned tutor who has accumulated knowledge about how to teach math to struggling students, a win-win.

Older people do know things the young do not. But if that’s true why did I reach a point that passing the baton seemed the right thing to do? It was a combination of two realizations. First, fluid intelligence does count, at least when you are younger. I saw new Ph.D.s with fresh ideas for solving those wicked problems. Second, in seeing that, I believed that they deserved their chance. I’d had mine. It wasn’t that I couldn’t do the work and that I didn’t have a wealth of experience to bring to the work. Instead it was because I saw an eagerness in them to take on these intractable problems, while I was eager to try my hand at deferred dreams, like writing and rosemaling. 

So, I passed the baton and retired. In passing the baton, I moved on to a different race, one with an accelerated pace but a wide-open track of new adventures. And like most finish lines in life, even in retirement, it’s always shifting. I love the vision of a finish line that keeps changing, moving forward, whatever stage of life one is in, whatever track one is running on. 

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Purpose Notwithstanding … Show Up

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A deep sigh of contentment, I’m in the world of exploration, ambition, and dreams. Time feels limitless. 

In actuality, I’m doing a Zoom meeting for the first class of OLPD 5501: Principles and Methods of Program Evaluation, the class I’m teaching this semester. Evaluation should be front and center, and it is, but, as the students one-by-one introduce themselves, inside I’m feeling all the positive anticipation of young people. Some describe their purpose for taking the class as exploring a new subject. Others are fulfilling ambitions, finishing their coursework for a degree. All are dreaming of possible futures. It’s incredibly energizing.

Coming back to my real life, I recall Richard Leider’s Annual Purpose Check-up in his book, Something to Live For. He suggests that yearly, retirees, who’ve found that something to live for, do an inventory that assesses how they are doing at living with purpose.

I wonder how my students would respond if I asked them about whether they are living with purpose. Their lives are filled with the a priori purposes of age and circumstance—getting an education, finding a partner, having a family, finding a rewarding career, if possible. They are driven by both internal and biological forces. Though some might be aware of a larger purpose, I suspect most are busy living.

I remember being one of those students—at least four times in my life when I worked on degrees to follow my own ambitions and dreams all while intent on getting married and having children. As far as purpose goes, I didn’t give it much thought beyond living a good life with family and doing something I enjoyed. Life was full of chances to grow—up, hopefully. Like everyone, I had good times, not so good times, new friends, old friends, losses and opportunities, career ups and downs. When something didn’t work out, I latched onto another way to keep going forward. What is salient here, I believe, is that time never seemed to be an obstacle. I didn’t worry about running out of it and there never seemed to be a lack of opportunities 

But it turns out, time does matters. We age. I turned 70. At 72, I retired. I was ready to retire. I was tired of the grind (note the word “tired” in “retired”). Nonetheless, retirement felt new—and as my history demonstrates, the new has a pull on me. 

At first in retirement, time expanded. Retirement removed a huge pile of obligations from my days, months, and years. I read books like Leider’s and Cohen’s The Creative Age.

But one thing was different, that amorphous concept called the future started to feel finite. At first the reminders were physical, a sore knee or hip, that slightly slower pace walking, a diminished desire to run up steps two-at-a-time, all of which reminded me of a changed and aging body, with limitations.

Then came the contextual changes of a smaller life. My world shrank. Colleagues from work no longer included me in after hours parties. I searched for personal interests to replace work interests. The books I read about retirement pushed the idea of having a purpose. Like Karen Rose, in her blog, If I Don’t Know My Purpose, Am I a Retirement Failure?, I worried about finding one. Looking back, I realized my most fervent purpose had always been raising children with career intermingled. The thing about retirement and aging is that those two centering purposes, family and career, diminish in importance, and I had to rethink about what might replace them.

Leider’s emphasis on purpose is grounded in research that says people with purpose live longer, happier lives. If you search Google for “purpose” and “goal setting,” you get the idea that without these, your life is meaningless. However, purpose, with its concordant striving, implies that what’s present is not enough, I am not enough unless I have a purpose for my life complete with short and long term goals. But I am not a program or a business! I am a human being, both faulted and perfect at the same time. 

Purpose also implies always looking ahead, managing what is to come by setting in motion actions that achieve goals, manifest purposes. But life is messier than that. To use a personal and admittedly extreme example, when my second husband and I married, we set in place actions to have a vibrant marriage complete with fulfilling and dynamic careers that would serve others—we had Purpose(s). But then he got terminal cancer, something worse than messy. Coming home from the hospital, after being given his diagnosis, I remember thinking, “I must show up.” Showing up, doing what needed to be done and giving love on a daily basis became my way of being in the world. 

After my husband died, I searched for purpose in my career, almost as a substitute for the purposes that died with his death. I read books about finding your purpose, The Purpose Driven Life. I prayed for a purpose like he and I had had. It seemed like my search became the purpose. During my quest, time inexorably moved forward. I retired with never having found that clear purpose for my career.

Upon retirement, I found myself doing that sort of life review that involves making meaning of the events of one’s life. Then I remembered the showing up commitment. It was one of those light bulb moments—like the truth was always there only I was so busy searching for purpose, I couldn’t see it.

Showing up is how I want to live. One might argue that “showing up” is a purpose, but I believe it’s more a way of being in the world. It means letting go of that driven search for purpose and goals and instead asking yourself, “What gives meaning to my life today?” and then showing up.

Picture by Lisa Congdon.